Tuesday, February 09, 2010

My Skin Cancer Experience

This has always been a blog primarily about my paintings, and less so about me. In fact, I'm generally reluctant to talk about my personal life here. However, over the past few months I've had an experience that I think is important to share, mostly because I feel it can help others.

I have a number of atypical moles on my body, and so for the last decade I've followed my physician's advice to have regular dermatology screenings. These were always routine appointments where the dermatologist looked me over, advised me to stay out of the sun, and then told me that everything was just fine. It usually felt like an annoying inconvenience. Since there was never a problem, I'd often thought about just skipping them altogether.

It's a good thing I didn't.

During an appointment in December, my dermatologist got visibly uncomfortable about one of the moles and asked if she could take a picture of it. She said it should come off within the next few weeks, which did not give me a warm, safe feeling. It was removed after Christmas.

She called a week later with the pathology results; melanoma, the most serious skin cancer. As you can imagine, it felt like the floor opened up beneath me, and I was falling into a deep pit.

Melanoma is a particularly aggressive form of skin cancer, and results in the largest number of skin cancer deaths. If not caught early enough, there are few treatment options available, and long-term survival is quite low. If there is any good news about melanoma, it's that it's completely treatable if caught early. That did seem to be the case with me, although there was still a small, but not negligible, chance that it had spread; about 3% to 15% , depending on the sources (though my doctors assured me that my odds were probably on the better end of that spectrum). The only way to know for sure would be to have surgery to remove an area of skin around the original tumor, as well as several of the nearest lymph nodes.

I had that surgery on January 28, and received the pathology results this past Friday. All the samples were clean; there was no sign of the cancer having spread. I should be fine. As my dermatologist told me when she gave me the initial diagnosis, I have a far greater likelihood of dying from something other than melanoma. It's an odd sort of comfort, but I'll take it.

I'm fortunate that I live in Boston and have access to some of the best medical care in the world. My dermatologist and surgeon are both wonderfully skillful and compassionate doctors, and I felt extremely well cared for. I'm not sure how they'd feel about me using their names here, so I'll just thank them anonymously, but from the very bottom of my heart.

Externally, the only things that will change about my life are that I now have several scars on my leg (still healing), and I'm paying very close attention to my health - in particular nutrition. For the next several years, I'll be seeing my dermatologist every three months for follow-ups, and I'll be viewing those as anything but routine.

Internally I'd say that more has changed. It was a full month from having the initial diagnosis to at last learning that everything was fine. During that time, I was living with the small but very real possibility that everything would not be fine, and I was compelled to look at things in a new light. Life is fragile, precious, and happens right now, in this moment, not in the stories I'm rehashing about 5 years ago or my plans for 5 years from now. I've always known this in my head, but now I feel it in my bones.

I'm grateful to have been handed this lesson, and to be able to walk away with it, relatively unscathed.

Now I've come to the real point of this story: If you or any of your loved ones have an unusual mole, particularly one that has changed in any way, please have a medical professional look at it at once. It could quite literally save your life.

Nothing - NOTHING - would make me happier than to hear that somebody read this article and because of it at some point got an early diagnosis and full treatment for their skin cancer.

There's no substitute for the good eyes of a doctor, but there are also many resources available online. Here are a few of them:
www.cancer.gov
www.skincancer.org
www.melanoma.com/
Although I've become most familiar with melanoma resources, I wanted to include a resource for non-melanoma skin cancers as well:
www.medicinenet.com

One more thing: I've been in touch with an artist friend of mine who has had similar experiences, and we've had an initial discussion about ways we can use our artwork to raise awareness and funds, perhaps through a virtual auction, or in some other way. As we work out the details, I'll of course be blogging about it.

So, I have every reasonable hope of painting for many years to come, and sharing the work with you right here. I'll be taking good care of myself, enjoying my life in the moment, and hope you all do the same.

Best wishes,
Jeff

38 comments:

rahina q.h. said...

having been through a similar experience recently as well as major surgery i could relate to everything you said here Jeff. Like you i went through some tough thinking and came through thinking i have a second shot at life, maybe i can do better:)

Chris Beck said...

So sorry to hear that you had to deal with this. I had a melanoma 33 years ago -- like you I was fortunate to be spared the worst scenarios. I hope you fare equally well as time passes.

Cristóbal Melgarejo Zamora said...

Just Testing!

Mark Alan Russell said...

Keep your chin up Jeff, my thoughts are with you. You inspire me to work harder at my painting.

Lorna said...

Good for you for sharing. My parents went through it for me as a child which is unusual at that age. My now adult children where chased about sun safety through their childhood.

RUDHI - Chance said...

Best wishes for your health, Jeff!!! Death is always working somewhere somehow, and keeps us aware of presence very deep - as VANITAS-stilllifes remember us of this important point; as you always do in your amazing paintings... Thanks for sharing your impressions of life!!!

Glendon Mellow said...

Best possible news from your tests, Jeff, and good for you to share.

All the best, man.

Carol Schiff Studio said...

Thanks for the information, Jeff. Happy to hear your outcome was positive.

A Sky Full of Stars said...

Your words are so important and they could save a life.

Just one month before my 29th birthday, only 8 months after the birth of my first child, I happened upon a Time Magazine "letter to the editor" while waiting for a friend in a financial office. It was written by the grieving husband of a 37-yr-old woman who'd lost her life to what originally appeared to be just another mole. That letter prompted me to visit a dermatologist about the only mole I'd ever had.

Less than 24-hours after that visit, I was in surgery having the mole, and much of the epidermis and dermis of my forearm, removed. Pathology had shown the mole to be Clark Level 4 Malignant Melanoma - my chance of survival was slim. If the melanoma did not kill me, ensuing lymphoma probably would.

I am one of the fortunate ones. My treatment was a success, and sixteen years later, I remain "clean". I've a horrible scar on my forearm - no fun, especially for a woman - but that scar is my badge of life. It is a small and welcome exchange for the alternative.

While my original diagnosis had a happy ending, I've learned the hard way that I will never be out-of-the-woods. Sadly, a few years ago, I became good friends with a man who'd coincidentally had a similar experience twenty years earlier. During the short course of our friendship, he suddenly, without any warning, became very ill and died less than six months later. His melanoma had "reappeared" as advanced lymphoma. It struck him quickly and with a merciless vengeance.

If it had not been for that random letter, I would not be here today. My son would have grown up with no mother, and my two younger children would not be here at all. A man whom I've never met - a heartbroken husband who meant merely to express his sorrow - saved my life, and he doesn't even know it.

Your post may well do the same for someone else.

Steve PP said...

Good news Jeffrey!

Jeff Hayes said...

Thank you all; I'm very moved.

Pam Holnback said...

Thanks you so much for sharing. This will help someone! And, I am glad that you are ok!

Dawn Chandler said...

I am moved and inspired by your courage and openness. I shall look upon my little painting of yours — a teacup with Twining teabag — with even greater appreciation now. Each Day. I raise my teacup to you any your long future of blessing the world with beautiful painting and insight. Thank you.

Julie Bloch said...

Glad things seem to be ok for you. Reading your post made me call my husband's derm to set an appt. He has had minor skin cancers removed before and is always slow in going to doctors. It reminded me to make the appointment for him as I don't want him to find out that he could have prevented something by just ignoring his scheduled check ups.

Dee Lessard said...

Matt6:34 None of us know if we even have tomorrow. So, live in the day we are given. Sounds like your life lesson. Thanks for sharing. We all need reminders because we're all guilty of letting other things take our attention! God has gifted you with a wonderful talent and I appreciate your sharing it with the world. Keep painting!

Luisa said...

Thank you for sharing this! It made me reflect on things throughout my day :) And I'm glad to hear you're doing better!

Claire Beadon Carnell said...

There is nothing like a brush with our own mortality to make us stop and evaluate what is truly important in our lives. I am so glad to hear that your pathology report after surgery was good. You are very wise to concentrate on nutrition to keep your body healthy - that and adequate rest can make a world of difference.
Take care, and keep excercising your wonderful talent to paint and create!

Ed Terpening said...

In your bio you wrote: "Several years ago I traded in my corporate desk for an easel." After this experience, I imagine your life has made that kind of shift. You look at things differently. As you said, "Life is fragile, precious, and happens right now". You traded up your life outlook.

I hope your readers get that mole checked they're wondering about. I imagine you wrote this post not for the emotional jolt, but the call to action. Save someone else, like "A Sky Full of Stars"'s experience.

Thanks so much for sharing this, and count me in any fundraiser!

Sally Tharp said...

Thank you for sharing your story.. and reminding us all how precious life is..

Cathyann said...

Jeff,
I, too, am grateful to you for sharing your experience, that you have been treated and that it was a success, giving you another chance at a full life.
best...

Carolina said...

Hi Jeff,
Thank you for sharing your story. It's very tough in many senses. I am so glad the outcome was so positive and that you took the whole experience as a life lesson. I'll take your advise...
Best regards,
Carolina

clew said...

Just stumbled across your blog. Best wishes for your journey and continued good health.

Your paintings are lovely. :)

Jeff Hayes said...

I want to thank each and every one of you who took a moment to comment here; I'm really moved by your stories and good wishes.

It looks like a few of you have taken this as a call to action to be aware and get checked, and for that I'm incredibly happy.

Thanks everybody!

Cindy Haase said...

So good to hear that your experience has turned out positively in terms of your health and your outlook on life.

I'm scheduling my dermatologist appt today. Thanks for sharing!

Johanne Morin said...

I'm glad you're still here to share this with us!

Cheryl Pass said...

Happy Valentine's Day...this year especially since your exquisite escape from melanoma. It is nothing to fool with...you are so right about being vigilant for this. We are all so fortunate to have such wonderful health care in our country to be able to catch and treat such a dastardly cancer!
Glad you are fine!!!

Linda Rosso said...

Your paintings communicate in a way words cannot, and today, your words communicated in a way the brush cannot.

Thank you for taking the time to share your story so honestly and to use your platform for a very important message.

I lost my 47-year old brother to melanoma, just two months after his diagnosis. He had never checked his skin. It was a real wake-up call.

I wish you continued good health screenings and send you virtual sunscreen, hats and gloves for painting outdoors.

Nancy Bea Miller said...

Yikes, thanks for sharing! I get checked every six months due to my atypical moles, as well. However, I have been really lax about this,sometimes letting as much as two years go in between checks. Your story is a good reminder why this is not a good idea. Anyway, I am glad you are okay, and again, thanks for the advice.

Isha Shiri said...

Hello Jeffrey!

The worst is over. Long life to you!

Actually cutaneous melanoma can be dangerous, I'm living in Brazil, SP state, Santos city of the front sea and my dermatologist always insists that everyone in my family we use sunscreen factor 50 for prevention.

The sites that displays are great help

I wish peace for you
Adelle

Andrei Soroker said...

Good health and good luck to you.

Kelley Carey MacDonald said...

I wish I'd realized you were going through this, Jeff, as my prayers would have been with you, too! It's wonderful that you got the treatment you needed, and that it worked out as it did. Yes, you got a lesson. Along the way most of us get something like this. I'm thrilled for you that you got through this. Thank you so very much for sharing.. I have an artist friend who just got diagnosed, and I'm forwarding him your blog.

Jeff Hayes said...

Once again, I really want to thank everybody who commented here. As my friend Ed mentioned one of the comments, this was not about an emotional jolt, but a call to action so anybody else in a similar situation can have a good outcome.

And especially thanks to everybody who shared their own stories; I wish you all the very, very best!

Jeff

Betty Bishop said...

I hesitate to mention this but it seems [from the comments] that artists may be more susceptible to melanoma [or moles?] than the average person? I wonder if this has been researched? Could it have to do with the oils we use?
My daughter has a mole on her back and I will send her your blog.
Take care,
Betty

Kristeena Crabb said...

Thanks so much for sharing this story, Jeff. I have let my annual mole checks slide and your story has shaken me up. I'm glad to hear that so far things are going well for you.

Anderson Scott said...

Jeff I've been a follower of your blog for awhile now. I am sorry to hear you had to deal with this.

My stepfather who was the dearest man in the world, passed away from this type of cancer in his early sixties. It was hearbreaking.

The best thing my mother ever did was marry my stepfather. He was bigger than life to me. It's been 6years and I still miss him terribly.

Take care of yourself. I expect many many many more years of your beautiful artwork!

Lots of well wishes your way, anderson

Nancy Goldman said...

Thanks for sharing your story. I'm glad your outcome was positive. I think Melanoma is a cancer that many people don't consider to be as dangerous as it is. I had one removed 25 years ago and thankfully have been fine since but I curse myself for all of those countless hours I spent baking (with baby oil on) in the sun as a teenager trying to get a tan.

Jennifer Bellinger said...

Hi Jeff. Love the new work in progress! Thanks for sharing your experience about gettng regular skin check-ups. I'm so glad to hear you had an excellent outcome. With that I will call and make the appointment I have put off for some time!

Jeff Hayes said...

Thanks everybody who recently commented!

Betty: The issue of studio safety, particularly when working with oils, is an interesting one, and one I'm planning to write about here in the near future. In short, I think there are some prudent precautions we should all take, but with that in mind, I'm perfectly comfortable with the level of safety in my studio. More to follow.